I have meant to write about this before, but weren't sure if it would be used for HCH/ACH patients. I just found out yesterday that in fact this new lengthening device can be used for second and third lengthening. This is extremely exciting news: much less pain, only one small incision so no more pin site infections. It is a new device so I am certain that over the next few years there will be lots of best practice gathered around the use of it.
http://www.paleyinstitute.org/?q=node/47
http://www.lifebridgehealth.org/Main/PressReleases/Sinai-Hospital-Surgeons-Codevelop-First-RemoteCont-354.aspx
Petite yet fierce - Ramblings of a pathologically information hungry mother about hypochondroplasia, about rearing 3 girls in a foreign country and about all the random thoughts my sleep deprived and over-stimulated brain can come up with.
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