We are in the thick of it now: school is starting tomorrow for Tara and Monday for Lia. I am still doing my old job and the new one and have a very interesting project that I am running at work as well... And we have 5 doctors apts between now and oct, 2 trips abroad, countless playdates and event... But I am not neglecting my reading about GH treatment for hypochondroplasia...
So here is what I have been doing, my mind is about to explode:
- Understand GH treatment, the history, how it is used for non- GH deficient children
- Understand the history and findings of GH treatment for children with hypochondroplasia
- Because I am the most risk averse person on the planet, I have read lots of studies on the safety of GH in general: including the infamous original French SAGHE study - if anyone wants it, let me know I have it from the Journal of Endocrinology, and the Belgian/Danish study and the critiques of the French study
- Then I have read about any potential adverse reactions for HCH/ACH
So now, I will just have to find the time to summarize my thoughts, share the links and then formulate my questions for the visit with the French professor...
Petite yet fierce - Ramblings of a pathologically information hungry mother about hypochondroplasia, about rearing 3 girls in a foreign country and about all the random thoughts my sleep deprived and over-stimulated brain can come up with.
Whew! This past week has been a whirlwind here, too. I am finally taking a night for myself after working until exhaustion the rest of the week. Wanted to give you a HUGE thanks for sharing all of your findings with us. I don't have a "science brain" and I really wish I did. It's hard for me to retain scientific info, even when it pertains to my own daughter and potentially her future. I'm going to work on that, though.
ReplyDeleteI'm with Vanessa. I don't have a brain for science either, so I really appreciate hearing your take on this.
ReplyDeleteMy craziness is about to start!