Looking through our window

Fi's favorite spot in our house is to stand in front of our bedroom window. We have huge floor to ceiling windows with a little step-out balcony - pretty silly for the Irish weather, I would have said 2 years ago, the wind blows through the double glazed windows and we freeze to death in the winter (and the autumn and the spring)...
She loves to stand there, she cruises endlessly from one end to the other, it's a good 20-30 steps for her. She loves licking the glass and drawing with her hands on it. She watches the cars at the round-about, the birds, the trees , the dogs, the babies. She watches life.
Not so long ago we would stare through the same window at night, waking up each night, not being able to go back to sleep, worried if our not yet born baby would live. Worried if she would live and have a horrible life, worried how our other children would be impacted. Then once we had the diagnosis, I would lay there at night, trying not to wake my husband thinking if Fi would have seizures, if she would ever speak, if she would have cognitive problems.
And here she stands, chattering away like any other child, but her normality bringing so much more joy to us.
We are back from France, what a whirlwind bizarre day it was. We took the business flights, first one out, last one back. Took the metro, did the whole wining and dining bit... even made it to a park to play - we actually had a fun day...
Meeting with the professor whose pet research interest has been treating Fi's exact HCH mutation since the 90s was equally weird. There I was sitting across him with my child who has a rare condition that can't be treated and he goes on to tell me how he has been treating children since the 90s and how the GH treatment can help with some growth and with some of the disproportion. He says that since he published in the Journal of Pediatrics, he now sees a new HCH family every week.
Fi can get the treatment if we want to, it's only for us to decide if we go down this route, if we seek a second opinion and a third one (knowing myself).
I am astonished by humans' adaptability, I was raised up to believe that the worst thing that can happen to you, is to  have a sick child. Here I am, a year later, and I have hope for my daughter and I am actually happy... We are weird creatures, throw us on a desert island and we will thrive, unfreakingbelievable... And the mothers I have met in this year. We should run countries, the world would sure be a better place if people who have this much energy and compassion for others would be in charge...